The Buckles Family

Formerly Conjoined Twins: Miracle Girls

Updates in 2009

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An AMAZING week

bucklesfamily Posted by bucklesfamily at 10:48 AM on October 26, 2009

First of all, I just wanted to let you know that everyone is doing well.  O.k., well Jade has something going on with her stomach (pain for over a week and a fever today), but no one is REALLY sick (we hope).


The reason I haven't posted updates this time is because we spent all of last week in Baltimore at the Kennedy Krieger Institute.  Erin and Taylor had physical therapy again, and they did fantastic!  In fact, Erin was downright AMAZING!!  I don't have time to write a long update right now, because I have to get ready for work, but I wll post links to two videos I took of Erin on Friday.  You're not going to believe it!  We have a LOT of work ahead of us, but we are definitely on the right track.  O.k., check these out:


Erin walking with braces and no e-stim


Erin walking with just e-stim on her quads and no braces


She is actually able to step forward with her legs.  Her hip flexors are starting to work!!  Her left leg is much better than her right leg at the moment, but we will keep working on it.  Her muscles are weak, but we will be doing a ton of electrical stimulation to build those up.  She is a long way from walking on her own, but we are beyond thrilled that she can voluntarily move those muscles at all.  THANK YOU Miss Robin (and Mr. Scott and Miss Rachel)  for working so hard to get her to this point!!!


O.K., have a great day!  I need to go, but I will update soon to tell you about our week. 

Categories: Erin, Taylor, KKI

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8 Comments

Reply Joyce K
04:51 PM on October 26, 2009
Way to go Erin! It is so great to see her working so hard and that it is truly paying off. Keep up the great work!
Reply Debra
08:13 PM on October 26, 2009
I am sitting here, crying like a ninny! I am so proud of you Erin. I know it is hard work and sometimes BORING but look at all you have accomplished and you are still young. By the time you are a teenager, you will be dancing WITH DADDY!
Reply Val
01:32 PM on October 27, 2009
All I can say is WOW !!! I'm so impressed with how hard Erin has worked and how well she is doing !!
Reply Leah
08:24 AM on October 28, 2009
Go Erin! That is so great that she is doing so well. I have such high hopes for all she (and all of your children) will achieve. :-D
www.life-according-to-leah.blogspot.com
Reply Pam K
04:31 PM on October 29, 2009
Way to go Erin! I loved watching your walking video's. Keep up the good work -- you are doing great!
Reply pepa
07:03 AM on October 31, 2009
Wow!! Those videos are AMAZING!!! I´m almost crying, Erin is very strong, I´m sure that she will be able to walk one day, what a magic thing...

Tell Erin that a lot of people is proud of her (all over the world smile ), we are proud to see her willpower month by month, your daughter is an inspiration, we can reach what we want .


GO ERIN GO!
Reply Betsy S
05:52 PM on November 05, 2009
Wonderful! So beautiful to see her moving like that!

(and will she be getting SOLOMON soon?)
Reply brandy
09:53 PM on November 15, 2009
Hi i just saw your story on tlc and watched the video of erin walking. Even though i do not know you personally i burst in to tears at the joy of her walking. you are such a blessed family and truly amazing parents . i have a 20 month old son and you guys are an inspiration for parents thank you .